Today we’d like to introduce you to Cindy De Mint.
So, before we jump into specific questions about the business, why don’t you give us some details about you and your story.
I have three sons that were diagnosed with Ataxia AOA2. This is a rare neurological disorder that causes your cerebellum to degenerate. They have lost their balance; fine motor skills and speech is affected. Slowly they will not be able to do anything on their own.
I found a support group in Orange County and started a Walk n Roll to raise awareness and money to find a cure.
Through this journey, I found out over 150,000 people also suffer from Ataxia.
We have the Orange County and La County support group that meet each month to help families dealing with the disease and love ones trying to support them.
Great, so let’s dig a little deeper into the story – has it been an easy path overall and if not, what were the challenges you’ve had to overcome?
The hardest thing is trying to raise awareness and money for an orphan disease that no one has even heard of.
Getting the word out hasn’t been easy but we have slowly but surely done our best.
Tell us about Orange County Ataxia – what should we know?
Orange County Ataxia is a non-profit under the National Ataxia Foundation. We Have events to raise money to fund grants for research.
Is there a characteristic or quality that you feel is essential to success?
Having people meet our sons and hear our story has had the most impact.
- Address: Orange County Ataxia
18543 Yorba Linda #194
Yorba Linda, CA 92886
- Website: orangecounty.org
- Phone: 7143294437
- Email: firstname.lastname@example.org
- Instagram: #orangecountyataxia #notaforeigncab
- Facebook: Orange County Ataxia